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BB Blog — Breast Cancer

My cancer story, twelve years on... Lotte is now a teenager!

Posted by Emilienne Rebel on

My cancer story, twelve years on... Lotte is now a teenager!

Olivia was 3 years old and Lotte just 7 months old (still being breastfed) that fateful Wednesday twelve years ago when I was told I had cancer. My 'Cancer Journey' is very much linked to my children and being a mum 

Joking with the Breast Surgeon that I hadn't come to my appointment to get the results of the previous week's biopsy on my own... I had the baby with me! I had found the pea-sized hard lump under the skin whilst breast feeding and knew this wasn't 'my normal'... but still I wasn't really worried. I had no family history, I was not overweight, I'd never smoked, drank little, vegetarian and breast fed both my babies... couldn't be anything right? Wrong.

Investigations, lumpectomy and lymph node removal and various scans proved the cancer was aggressive... I had Grade 3 advanced Breast Cancer. Without intensive and immediate action my life was in danger and I wouldn't get to be a part of my children's lives; I wouldn't get to be their mummy. The worst thought for me personally was that they were too young to remember me. 

I had to do everything I could to ensure every year possible... to get to an age where they would remember me... feel my love for them and know how precious they were to me. I repeat, my cancer journey' is very much linked to my children.  

Twelve years ago this weekend just gone Lotte had her 1st birthday and whilst I was too ill to arrange a party for her we started our new tradition of 'Birthday Breakfast' and I vowed to make every other birthday very memorable for them.

I had my second chemotherapy infusion on that day at home. My hair had already started to fall and I'd shaved it in preparation. Quite a traumatic experience and I with hindsight urge any woman needing to shave her head to entrust this to someone they trust and is very sympathetic, whomever that may be (which may not be the obvious choice).

Losing my hair with Chemo whilst it was difficult to deal with at the time with my young family. I looked very ill. I lost the hair on my head and all over, including my eyebrows and eyelashes and combined with the bloating from the steroids, I looked very different.

My hair loss however set me on a path to start my business Bold Beanies and make a range of cancer alopecia headwear and gifts to make a terrible situation a little bit more bearable. I designed them with younger cancer patients in mind with an emphasis on style as well and for comfort and ease. 

I was unable to lift my arms for long after my mastectomy and lymph node removal and therefore tying traditional headscarves was too difficult for me. I needed something soft and simple to slip on and get on looking after my children. I also felt incredibly cold at night. The wooly beanie hat I wore was itchy and often got too hot, so I would take it off and then I would get cold quickly. My chemo headwear needed to be made from thin natural cotton material, soft, stretchy, breathable and temperature controlling. Its so much easier to face the side effects of cancer when you're able to get a good nights sleep. 

Having received a lot of flowers by post from well meaning friends and family, I also felt it very important to provide gift solutions for cancer patients, helping those around them feel less helpless. 

With every year that passes I gain strength in the bond I have with my girls. I teach them, I guide them to grow into confident young women who very much know they are loved whether I am with them or not.

Whilst I continue to battle with making my life count, battling the feelings of borrowed time, a bucket list of dreams and the normalities of being a single parent with a growing business and people in my life who are determined to make it harder than it needs to be... I hope that others who are at the start of their story with cancer that they get some comfort from my 12 years... sharing the positive stories is so important. I'm still here and enjoy every day with my children and look forward to the exciting times in their lives that I get to be a part of. 

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Sarah Thomas Swims Channel for "All the survivors out there"...

Posted by Emilienne Rebel on

Sarah Thomas Swims Channel for "All the survivors out there"...

Sarah Thomas, 37, a cancer survivor has become the first person to swim across the English Channel four times in a row non-stop.

Sarah began the epic challenge in the early hours of Sunday and finished after more than 54 hours. The open water ultra marathon swimmer - who completed treatment for breast cancer a year ago - dedicated her swim to "all the survivors out there".

The swim was due to be about 80 miles but because of strong tides Ms Thomas ended up swimming closer to 130 miles.

Ms Thomas completed the final leg on Tuesday at about 06:30 BST.

THANK YOU SARAH!! What an amazing achievement! 

Speaking to the BBC after she came ashore at Dover, she said: "I just can't believe we did it.
"I'm really just pretty numb. There was a lot of people on the beach to meet me and wish me well and it was really nice of them, but I feel just mostly stunned."

She said she planned to sleep for the day, adding: "I'm pretty tired right now."

Swimmer Lewis Pugh said in a tweet: "Just when we think we've reached the limit of human endurance, someone shatters the records." 

I know of another swimmer Helen, who has inspired a collection of Bold Beanies chemo headwear who is also an incredible swimmer and inspires me every single day!!

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Oncologist Visit, Tamoxifen & Hormones.

Posted by Emilienne Rebel on

If you have ever had a cancer diagnosis, it's all consuming. A relentless round of hospital visits, doctors appointments and potential surgeries, chemotherapy, radiotherapy, scans... but always a rollercoaster of emotions and anxiety for you and your loved ones. For a time in your life it dictates everything.

And then, if you are lucky enough you come through the other side, life somehow eventually needs to return to 'normal'. You need to get on with everyday life, prepare for events, take care of loved ones and pay those bills... and try as best you can to remember the lessons learned and live the best life possible. 

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Kylie's Emotional Set at Glastonbury, 14 Years after Breast Cancer Diagnosis

Posted by Emilienne Rebel on

Kylie's Emotional Set at Glastonbury, 14 Years after Breast Cancer Diagnosis

Kylie could have broken record for largest crowd  performing an emotional set at Glastonbury's Pyramid Stage last weekend...14 years after she had to pull out of headlining the festival due to her cancer diagnosis. She says, I wonder about having kids - but it won't happen.

"In 2005 I was meant to be here," she said. "Circumstances meant that I did not make it. I wished things were different, but life is what it is. We're all together in this moment."

The Australian pop star says her breast cancer diagnosis in 2005 "changed everything" about the course of her life and said she sometimes wonders what being a mother would be like, but has accepted that it will never happen.

The Australian pop star, 50, said her breast diagnosis in 2005 "changed everything" about the course of her life, and that she tries not to dwell on "regrets" outside of her successful music career.

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Signs of Breast Cancer in Men

Posted by Emilienne Rebel on

Breast cancer in men is rare. Around 350 men are diagnosed with the disease each year in the UK compared with over 55,000 women. However, the earlier breast cancer is found, the better the chance of successful treatment, so it’s important to look out for any unusual changes and get them checked by your doctor right away. Around 80 men die from breast cancer in the UK every year.

Signs and symptoms of breast cancer in men
Checking your breast tissue regularly is especially important for men who have a family history of breast cancer or a genetic condition called Klinefelter’s Syndrome. Most breast tissue in men is concentrated in the area directly behind the nipple and the surrounding pigmented area, called the areola. Most – though not all – breast cancers in men appear near the nipple as firm lumps.

Unusual changes to look out for

1. a lump behind or near your nipple, or in your armpit

2: a change in the appearance of your nipple or areola (including change in direction of nipple)

3: nipple discharge or nipple sores (ulcers)

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